Neglected

I decided I've been neglecting this blog for too long, the summer's been busy busy so far! June flew by with Ashlyn spending a week with our good friends, the Wolf's, and then both kids going camping with Omie & Opie A and then a trip to the beach for Ashlyn's 16th birthday with 3 of her friends and her Omies and Opie (pics here ). Then we had a couple of weeks before Colten went to Hermann Sons Camp and then this week Ashlyn has been volunteering at a VBS in Mason and Colten has been going to the VBS and had a football camp. Next week is more football camp for Colten. So far he's held up pretty good! 

Today we went to see Ashlyn's neurologist in Austin again. She's had 4 seizures now, the last one of which happened the Monday before her birthday and we don't know why. The two before that, we were pretty sure came from lack of sleep. Since the last one, she's been zoning or blanking out more and recently started twitching her hand and head on occasion. This has been very concerning and we are always worried about how she's feeling and if she might have another seizure, even with her medicine. The doctor wasn't sure what to make of it exactly and said we could try upping her meds and see if that helps or test her more thoroughly to see if the blanking out episodes she experiences are mini-seizures or just some side affect of the medicine. We decided to go with the latter, so we'll be scheduling the test for next week or the week after and she'll be spending 1-3 full days in the hospital being monitored by an epilepsy monitoring unit or EMU. Hopefully they can find something out and figure out how to fully control it. It's so frustrating not knowing how to fix this, especially since it's preventing her from driving.

So besides this, we've been trying to take it easy so she can get enough sleep (doctor recommends at least 9 hours every night, tough to do for a teenager!) and trying to stay cool. I will update again after she has the test, please pray for good news!